AD, Data Partnerships - Rare Disease

What you'll do

• Implement rare disease data partnership strategy and manage relationships with external data providers, platforms, and vendors.
• Oversee data quality, privacy, security, compliance, governance, and stewardship across external partnerships.
• Track partnership spend and performance, report metrics to leadership, and advise stakeholders on data sources and their appropriate use.

What they ask for

• Bachelor’s or Master’s degree in Information Management, Computer Science, Business Administration, or a related field.
• Minimum 6 years of experience establishing and managing data partnerships, with a strong focus on rare disease, healthcare data, data governance, data management, or related roles.
• Deep understanding of rare disease data assets, partnership principles, and healthcare data privacy, security, quality, and compliance.
• Strong leadership, communication, stakeholder management, influencing, change management, analytical, and problem-solving skills.

Nice to have

• Prior experience working with or for a data vendor, data provider, healthcare data platform, or analytics organization.
• Experience with IQVIA, Komodo, MMIT, Symphony, Definitive Healthcare, Veeva, claims/EHR data providers, patient services data, specialty pharmacy data, or similar sources.

Pay

$145,600.00 - $270,400.00 USD base salary

Tools

IQVIA, Komodo, MMIT, Symphony, Definitive Healthcare, Veeva, claims/EHR data